Wednesday, July 7, 2010


The kids all had a slumber party last night in Ethan's bed and are now, very loudly playing in his room behind closed doors, leaving me to peace for the morning. Yesterday brought about a subtle but big change for Ethan....he took a shower and enjoyed it. Up until now he protested loudly about showers and we are not sure if they were uncomfortable for him for some reason, he did not like water spraying in his face, or if he was afraid or didn't feel safe in he really loved being in the bath. A little over a year ago we had a huge battle with the courts/attorney/case manager who love to butt in and tell us how to raise our child, and think they have the right simply because Ethan has a bit of money awarded to him for his birth injury. They wanted us to spend a huge chunk of it on remodel of parts of our home that would give Ethan his own bathroom with a roll in shower, which at the time was completely unreasonable as he refused to take showers and he was still plenty small enough for us to carry him in to the bathtub, etc. Well now that things are changing, Ethan is maturing, not to mention that for the first time in his life he has had significant growth, gaining over 15 pounds in the last 12 months, it is time to re-think how we need to move forward....the timing is bad with the economy and job market as they are(without security) but in all honesty, with Ethan, for us it has always been the here and now, because we don't know how long he will be here with us, we hope a long time, and who knows with his disposition and zest for life it very well could be, but statistics paint a picture where we need to enjoy every day we have, because time is limited. I have to remember to live every day to the fullest, because tomorrow is uncertain....truly it is that way for everyone, but having a child like Ethan just gives it more meaning. Be happy, share with others and give it your all while you have your all to give ;-)

Sunday, July 4, 2010


Sometimes we get so carried away with the trials in our own lives that we fail to recognise the sruggles endured by others. It is times like these that we need to remember to look beyond ourselves, for in giving comfort to others in their struggles we receive comfort in our own.

It has been a particularly annoying week....tired from our vacation, and chores building up as we try to get back to our regular routine, I find the battery on my van is dead, a victim of our intense summer busy is our schedule to take it in for repair at the immediate moment, my husband and I agree to share the car. I drove him in to work and then, due to some issues I was having with back pain, I take the children to the mall for a nice long walk which usually does the trick to sooth my back ache and it is nicely air conditioned, even though the kids would have prefered a park....not for me when it is 110+ outside! After a couple hours we make our way home, we are in an accident as a boy makes a left turn right into my fromt end in our only working vehicle. Lucky, the kids are ok....I am sore but with out major injury, but the car incured $6000.00 worth of damage from an uninsured driver.

We had planned to get our very delayed accounting done that evening, and now time was sucked up with talking to our insurance company, getting the car in for repair and getting a rental car to get us by until both our vehicles are operating again....and I am in pain, my shoulder, my neck, and my pelvis causing me quite a bit of discomfort. Needless to say, it did not get done, adding to our growing to do list. Other conserns arise as we get a call from the neurosurgeon to schdule Ethan's intrathecal baclofen trial in two weeks, he will be spending a week in the ICU, and now I need to get his hospital gowns done ASAP.....


Need time to breath, slow down, relax. I know it was overwhelming and it was, still is hard to take in, hard to be pulled in so many directions. I needed so very much the lessons and testimonies I heard in church today, to bring it all into perspective. To remind me that we are all going through our own struggles and we are all being pushed to our own limits and that the only way we are going to get through this is to let go, put our faith in him, hold each other up, support each other and through serving others we will find the stregth to get through what we are dealing with. Today of all days we remember and celebrate FREEDOM, and there was a lot that went in to getting that freedom and those rights....people had struggles that I can not even comprehend being able to survive, and yet they endured faithfully.....and for them I am greatful, and yoke is easy, and my burden is light.